Quote for October

A Prayer for the Ephesians Eph. 3:14-21

For this reason I kneel before the Father, from whom His whole family in heaven derives its name. I pray that out of His glorious riches He may strengthen you with power through His Spirit in your inner being, so that Christ may dwell in your hearts through faith. And I pray that you being rooted and established in love, may have power, together with all the saints, to grasp how wide and long and high and deep is the love of Christ, and to know this love that surpasses knowledge--that you may be filled to the measure of all the fullness of God.


Now to Him who is able to do immeasurably more than all we ask or imagine, according to His power that is at work within us, to Him be glory in the church and in Christ Jesus throughout all generations, for ever and ever! Amen!


Wednesday, December 16, 2009

I'm Fine

Hi!

A week ago I got the report back from the pelvic ultrasound. It shows a cyst 1.6cm long that is fluid-filled. It probably was a follicle that ruptured, but the fluid didn't leave as it should have. The pain decreased after 10 days, so I am doing much better.

My biggest concern was that I might have to have a laparoscopy to remove the cyst. I emailed a bunch of friends asking for prayer. Within 1.5 hours, I could feel the weight of anxiety lifted off my shoulders. We were at "Christmas on Euclid" where our daughter's choir from Colony H.S. was going to perform when I could feel peace surrounding me. Thank you for praying!

I saw my oncologist on December 15. More good news! My cancer marker, Chromogranin A is down to 25 again; so it's staying between 20 and 50. That has never happened before. My gastrin level was almost normal-- it was only 139. Normal fasting gastrin is under 100, but my previous numbers have been more like 200, so this is good. So we have two indicators that my tumors are staying small.

It's a school night, so I can't say much. Vacation starts on Saturday for two weeks. Yay!

Sharon

Sunday, November 29, 2009

Something Got Healed!

Hi,

Update on Jan. 27, 2010: I continue to feel better with regard to muscle aches. It seems as if I am not having fibromyalgia pain! When I was prayed for, I was at a weak point where I doubted that I could continue teaching all day. I felt like I needed to get someone to help me with my last two classes each day: my legs were not strong enough to do it. Praise God! I have been teaching all day for November, December, and January without needing to add an assistant.

Since this is arthritis season, I have specifically been checking the pain I have. It all seems to be arthritis pain, not muscle pain. Thank you, Father.

On November 7th I wrote that I had been feeling better for a few weeks after people prayed over me at church. I am still feeling much less aching in my arms and legs, and I am stronger in my limbs, also. Let me explain how this happened.



After the sermon during a worship service in October, the pastor asked people who wanted prayer to come to a room near the sanctuary. I went in because I'm always willing to be prayed for, and I was very tired and aching. I wondered if I would be able to continue teaching all year.


I had sat in my "prayer chair" that morning and explained to God that I was weak, and I hurt in so many places that I didn't know which ailment was causing which symptoms. There was pain from my back, I ached from my head to my knees, and I was weak. Some of the symptoms were from cancer, some from arthritis, some from fibromyalgia, and some were from the degenerating disks in my neck and lower back. Mostly I just told God about it, and I asked for some relief.


Therefore, after the service, I was very happy to have prayer for healing. I talked with the ladies about what I needed, and three people prayed for me. Then a group of us drove over to Everest, a local eatery. Something happened just before R. pulled into the driveway at Everest.


Suddenly, all I could feel was the pain from my back--all the other pain was gone! However, the back pain was magnified and I could picture it.
I saw the pain in my back as light radiating out like light from a star. There were 8 rays of light going in different directions from my neck. Four rays went to my head and neck and four rays went to my shoulders and back. The rays going to my head and mid-back were longer than the rays to my neck and shoulders.
From the degenerating disks at the bottom of my spine the "star" was smaller with four rays that were fainter and only about four or five inches long. The size and brightness of each ray matched how strong the pain was.


That "picture" and intense pain lasted 5-10 seconds. It was just long enough for me to feel the pain and understand what was going on. When I went on into Everest I felt much better, and just noticed pain from my back and arthritis. Since that night I have had a few deep pains from fibromyalgia--the ones that feel like the painful muscles are next to my femur and humerus. I have not had aching in my arms and legs and my muscles are stronger. I am stronger.


So, what was healed? I'm not clear what it was, yet. It could be that God took away the fatigue and pain from the carcinoid cancer. He may have taken away the little aches from fibromyalgia. Right now as I wrote the last two sentences, I've been having sharp pains in both thighs. Small, but sharp pains. Is He telling me the fibromyalgia is still here?


I'm just grateful for His Love and relief from feeling so badly.

Love,
Sharon

Saturday, November 7, 2009

It's November

Time really does fly by in the middle of the school year. I haven't stopped to write here for a few weeks.

I have a couple of different answers about the nausea and vomiting. My internist said the sudden vomiting could be from twisting in the small intestine where I had cancer surgery. A small piece of the intestine was removed, and when that happens there's a chance the bowel can kink there. That would explain the suddenness of the vomiting. The pain to the right of the mid -line was right on top of the duodenum--that's were my tumors were.

My oncologist said that vomiting is a part of carcinoid syndrome. My nausea is usually about 30-45 minutes after I eat breakfast when the food would have reached my duodenum. I have not been eating as much for breakfast lately because I am feeling full and I don't want to vomit. Breakfast is when I eat the largest amount of food. I am really hungry then and after school.

My Chromogranin A is still staying down below 50. It is at 46 this month, and I have been feeling better. When school started I felt tlike I might have to quit teaching after this year, but now I have more endurance. I've felt stronger for about three weeks, when I had a few people pray over me at church.

God is good all the time.
Sharon

Monday, October 19, 2009

Cancer is Tough

I have new symptoms. I think they are from the carcinoid cancer or maybe my stomach is doing something new. I want this to be a true account, so here goes.

Now I am vomiting. A few times this year I have gone through a season of feeling queasy in the morning. I only notice it between 7 and 8 am. Then by 8 o'clock I'm at work and too busy to notice. On Thursday I suddenly vomited at 7:15 as I was about to leave for work. I felt very sick as I called for a substitute. A teacher has to punch in a bunch of numbers and answer at least 10 questions, just to get a sub to show up. I was shaking and had sweat dripping off my chin as I pushed buttons on my phone. I just wanted to get the call completed before I was sick again. Then I went back to bed until 1:30.

Today (the following Monday) I had a strong pain in my upper right quadrant of my abdomen at 7:20. It is a few centimeters distal of where my gallbladder was. I got in my car and felt the pain again before I backed out of the driveway. I pressed on the painful spot, and spit up into the trash bag about 20 seconds later. I went to school and was not sick again.

The pain does not seem to be where my stomach is. When I had an ulcer the pain was left of the mid line; this is to the right. I do have acid reflux, so I hope this is just some variation of that. I have never vomited from reflux, and I usually feel the burning in my stomach or throat.

I will see my internist on Wednesday.

Also, I have developed a feeling that is like a shudder of pain and weakness. I have felt it several times this month. Once when I had an episode of carcinoid syndrome, I stood up and had the strongest occurrence. Pain and weakness ran down through my thighs. I almost felt as if my legs would give out, but the weakness lessened as it reached my knees, and then it disappeared. That has happened before. This weekend, I had that sensation develop in my shoulders and run into my back. Again, I recovered because the pain weakened as it ran on down my body. What happens when it doesn't fade away?

Sunday, October 11, 2009

Our God is an Awesome God!

Our God is an Awesome God
He Reigns from Heaven Above
With Mercy, Pow'r, and Love
Our God is an Awesome God!

Our God is an Awesome God
He Reigns from Heaven Above
With Mercy, Pow'r and Love
Our God is an Awesome God!

Friday afternoon I was working in my classroom at 3:50. I had expected to go home at 3:30, as soon as an IEP was over. That's a special meeting for a Special Education student.

I was looking at the clock, making sure it was right. I was feeling OK (to my amazement), so I went ahead and wrote on the board preparing my requirements for Monday. I had my Homework, Agenda, Warm-up, Objective and the Standard on the board. That should make it easier to get started on Monday morning. I left school at 4:10.

I got home 25 minutes later. I came in the door and stumbled into the living room where I sat on the loveseat and petted the dog for a few minutes. Then Spunky stretched out beside me to take a nap, and I fell asleep, also. My condition had changed on the drive home. I couldn't even walk straight or stay awake. Somehow God preserves me while I am in my classroom.

When R came by about 5:00, Spunky got super-excited to see him. I staggered into the bedroom, pulled a nightgown over my underwear and slept until 7:40 pm. I got up at 8:40pm and felt pretty good. K and I watched some TV and talked. I went to bed about midnight.

Saturday, October 3, 2009

October Begins

Hi!
I've been teaching for 5 weeks so far and progress reports are due. School is in full swing. We have done 3 labs in seventh grade, and our famous cell models will be done on Tuesday.

This is where I begin to wear out. Always have, but this year is different. I have had to spend Saturday resting all day--except for doing laundry. Last week I stayed in my nightgown until 5 pm. This week I slept until 12:49, but I was bathed and dressed by 2:00. A small victory.

I don't know which of my ailments is getting me down. My cancer marker is low, but my body is still battling the disease. The battle makes me fatigued. The degenerating disks in my neck and lower back cause strong pains that radiate out from the spine. I can recognize those pains. The nerve pain in my neck is the strongest pain I have. My arthritic right arm and hand ache all the time now, and I never had arthritis pain until February 2009. I know people with arthritis are supposed to exercise their joints, but at the same time are to rest and not do too much.

I have two autoimmune diseases called Sjogren's Syndrome and fibromyalgia. Sjogren's has been attacking my salivary glands and lachrymal glands for 23 years. It's primary symptoms are dry eyes, dry mouth, and musculoskeletal pain. My fibromyalgia pains come and go. Before I had a diagnosis, I would have strong pains in my arms and legs that I can now recognize as fibromyalgia, but what I feel today is aching all over. I don't know which condition is making me ache--not everyone has five choices to pick from to figure out why they are hurting.

So there you are, all my symptoms. I feel like "These are the times that try men's souls." I wonder if I should take the whole weekend off from working in order to go back to school on Monday feeling refreshed. I usually work from 2-6 hours over the weekend to get grading done. And I am way behind right now. It's almost impossible for a teacher to feel like she is on top of everything. There is always more we could do to help more students achieve. I hear great teachers at work saying they love teaching, but the grading takes them until 1 am some nights. What about our health?

I appreciate your prayers. This is the time that takes great faith; when you have to press on with no big chance for improvement. Like my rheumatologist said, "It's not going to get any better" when speaking about my degenerating disks. I think that sums up the whole situation. Sometimes I envy the patients at the Chou Family Cancer Center who look so very sick that you know no one expects them to work for a living. Sometimes I just want to sit back in a recliner and be pampered, instead of jumping back on the freeway to hurry home again. Somebody drive me home and feed me dinner. But I stop by Carl's Jr. for food and fall asleep at 7:00pm. At least I don't grade papers on those nights.
Sharon

Saturday, September 26, 2009

Update 9/26/09

I have good news!

I saw my oncologist on Tuesday. My Chromogranin A is down to 27 again! I guess it just went up because of the testing I went through. So it's gone back down to normal for the third time in 5 months.

On the way to Orange County I was singing along with one of my favorite CDs for comfort. I was imagining myself going through another procedure with the music to calm me. On the way home I was singing on my way rejoicing!

Jesus my all to Heaven has gone! Glory Hallelujah!
He whom I fix my hopes upon, Glory Hallelujah!

I want a seat in Paradise! Glory Hallelujah!
I love that union never dies, Glory Halleljah!...

I know that my Redeemer lives! Glory Hallelujah!
What comfort that sweet sentence gives, Glory Hallelujah!

Shout on, pray on, we're gaining ground, Glory Hallelujah!
The dead's alive and lost is found, Glory Hallelujah!

I love that song! It's from Celtic Joy, A Celebration of Christmas by A.M.E.N.
They sing in English, Irish, Latin, and Greek.
I like this CD so much, I imagine it being played at my funeral as people come in to be seated. There are three songs about heaven. It isn't Christmas music, but hymns from 100 to 800 years ago. It would be nice to listen to at Christmas time. Some songs are plainsong. There are three people singing three parts; I sing along with the middle part.

Love,
Sharon

Sunday, September 6, 2009

Update 9-6-9

Hi,

When I was at the Medical Center getting my Octreotide injection this week, I got my lab results. The nurse has my whole chart there at that time, so I can see what both doctors have written, see my labs, read my surgical reports... I can do all kinds of cool stuff while we wait 45 minutes for the medication to arrive from the pharmacy. I have the delight of using a frozen drug; so we wait until the stuff thaws out and gets mixed up. Then the pharmacy technician shows up gently shaking the tube from side-to-side until the nurse takes it from her. It's a 5cc injection given in the hip and it's good for 28 days.

Anyway, my numbers are Chromogranin A 109; Gastrin 210. Gastrin is normal 0-100 and CgA is normal 0-50; so my numbers are a little over double the normal amount.

I will see my oncologist on the 22nd of September. If I don't hear from the surgeon's office by then, I will tell him about the EUS. Before then, I will email the PAC and ask about the procedure. I don't want to tell the oncologist that the surgeon's office slipping up. I would like to call before then, but I don't remember to call from work. I'm too busy with school stuff, and by time I get home everyone at the hospital is ending their shift.

I've noticed my attitude toward having another exam done has become that it's a nuisance to go through it again. Actually, the doctors might be finding my third tumor and getting it out of there. We know there is a tumor(s). It's just that i went through this twice during the last school year, and the doctors didn't find anything. I missed two days of work which uses up my sick leave.

This is different than the first tumor in spring 2008. Now I'm not in such a big hurry to find the tumor; I've been convinced that it won't make much difference if they do. If it's in the intestine, the doctors can remove it. It it's not there, I just keep taking medication. If the tumor is in the liver, the surgeon can't do anything unless the tumor is big enough to stick a needle into it. He says it needs to be about a centimeter before he can see it. Nothing the doctors can do will save my life, so it doesn't seem such an imperative to get tests done.

I have gotten my oncologist's attitude. There's not much we can do but manage my condition for as many years as possible. Carcinoid is a weird cancer. You may be OK until the time when your particular case flairs up, and then you go right down the tubes. But then, the docs can take out a foot or two of your intestine and you're good for another year. At least you're still alive--you might not be too good, but you're still here. Some patients take 10 or 15 years to die.

A Story About My Mom or Maybe it's About God

This memory came to mind this morning after a season of prayer. I took that as an OK to write about it.

In July I was giving myself 3 injections of Octreotide per day. (I have to do that before I have scans done.) I went into the bathroom one afternoon for my shot. As I uncovered my belly, I could see the ring of bruises around my navel. Since the shots come every 8 hours I get quite an assortment of different colors of bruises. They are usually little green and brown bruises within a day. Sometimes I don't bruise.

As I was looking at my belly, I felt my mother's cools hands covering the bruises in the right upper quadrant around my navel. A memory came rushing back.

There was a time in my childhood when I had to have shots given because of a lung infection. I had gotten the first shot previously, and Mom went with me into the room when we came back for the second shot. I remember lying on the examining table, so the nurse could inject me in the hip.

My mother saw that I had a bruise on my hip from the previous injection, and she placed her hands across the bruise. It was cool and comforting.

That was the exact same sensation I had when I went to give myself my shot that afternoon. I could feel her cool hands. It was just as she had done; she had placed the fingers of her right hand on the bruise, and laid the fingers of her left hand on top of the right hand at the opposite angle. It occupied a small space, not the area of a complete hand.

So, when I felt that coolness on my belly, I had a comforting thought that my mother had seen what was happening to me, and she cared. That, maybe in heaven, she had prayed I would have comfort in the midst of getting so many injections.

Love,
Sharon