After posting just last week about our trip to France, I am going through a rough patch in my carcinoid symptoms. From the evening of July 6 through July 9, I had repeated diarrhea. Usually, I am only sick for a day or for the morning, and then I just collapse into bed. When I get up after sleeping, the diarrhea is often gone. I take Welchol at the first sign of unusual bowel activity, and I keep up with my Octreotide shots.
I just want to track that this does happen. I was sick for 3 days and today I am noticeably weak. I took a loooong time to walk 30 feet toward my car from the doctor's office today. I had a regularly scheduled appointment with my oncologist today.
One change we made was to start a standing order to have my Chromogranin A and Gastrin checked every two weeks. Whenever I get sick suddenly, I can go in and use that standing order to see if I have high levels of either compound in my blood. I would really like just one time to catch my cancer markers in the act of making me suddenly sick.
The last time I went through a period of being sick over several days was in March this year. I wrote about it on March 16, 2013. One thing I want to do is to keep track of the regularity of when I get sick. Here we have a four month time again when I gradually got better, then got worse. I would like to figure out why the tough times come around.
I realize that I have not written much lately about drawing strength from scripture or from music. One verse I have known was in the Bible, but I didn't know the location of was found by me while on the Seine!
Psalm 118:17 I shall not die, but will live, and proclaim what the LORD has done. The LORD has chastened me severely, but He has not given me over to death.
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